, living w/ Congenital Vascular Malformations [ kare4rare.wordpress.com ]

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...non-commercial site, non-profit, personal reference site

CONGENITAL VASCULAR MALFORMATION SPECTRUM

— A PATIENT DEVELOPED MODEL

◈ Port Wine Stains:
We are not all the same

◈ Syndromes:
We are not all the same

◈ Science:
Here is our Grand Compendium

Screenshot

Science:

Here is our Vascular Anomalies Brief

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Diagnosed:
Syndrome & Symptoms

Klippel-Trenaunay Syndrome (KTS)

… a KT-Patient’s Personal Notebook which I reference when thinking about how much I have learned since my KT diagnosis.

Check back or subscribe for updates, as I transfer my personal notes into this digital archive.

This part of our journey begins now, it is conceptual. Soon. Nothing is ready for publishing herein.

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