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, living w/ Congenital Vascular Malformations [ kare4rare.wordpress.com ]

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  • graphic: CVA SPECTRUM • THREE OF MANY CAUSES OF PORT WINE STAIN
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CONGENITAL VASCULAR MALFORMATION SPECTRUM

— A PATIENT DEVELOPED MODEL

Port Wine Stains:
We are not all the same

LINK

Syndromes:
We are not all the same

LINK

Science:
Here is our Grand Compendium

LINK

Science:

Here is our Brief
Reference

LINK

— — — —

Diagnosed:
Syndrome & Symptoms

Klippel-Trenaunay Syndrome (KTS)

… a KT-Patient’s Personal Notebook which I reference when thinking about how much I have learned since my KT diagnosis.

Check back or subscribe for updates, as I transfer my personal notes into this digital archive.

This part of our journey begins now, it is conceptual. Soon. Nothing is ready for publishing herein.

[ classification Matrix - Hamburg 2023 ] via radiopaedia.org

[ classification matrix - ISSVA 2014 / 2018 historical ] via radiopaedia.org

[ classification matrix - ISSVA current ] via ISSVA

[ glossary - ISSVA ] via ISSVA

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Navigate to Selected Pages

  • CONTACT US
  • EDITOR BLOG • READER POSTS
  • Home Page
  • graphic: CVA SPECTRUM • THREE OF MANY CAUSES OF PORT WINE STAIN
  • graphic: CVA SPECTRUM : THREE CONFOUNDED SYNDROMES
  • graphic: CVA SPECTRUM • OUR BRIEF CLASSIFICATION HANDOUT
  • Understanding Klippel-Trenaunay Syndrome
  • Meet Willi – the Author
  • Building a Resource Together
  • . . . page template
  • #721 (no title)
  • ALL BLOG POSTS • MOST RECENT SORT
  • CONGENITAL VASCULAR ANOMALIES SPECTRUM

Day: June 21, 2026

*NEW

DRAFT – Understanding Vascular Anomalies

399 • DRAFT — A Patient and Parent Oriented Compendium — Based on the ISSVA Classification of Vascular Anomalies © 2025 International Society for the Study of Vascular Anomalies. Continue reading DRAFT – Understanding Vascular Anomalies

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