Vascular Anomalies Compendium ⌂
733 • Part 8 of 8 — Continue reading Vascular Anomalies Compendium ⌂
Month: June 2025
Before You Say Yes →
569 • Part 7 of 8 — Continue reading Before You Say Yes →
What the Specialists Are Actually Looking At →
554 • Part 6 of 8 — Continue reading What the Specialists Are Actually Looking At →
Three Confounded Syndromes.
240 • Part 5 of 8 — Continue reading Three Confounded Syndromes.
We Are Not The Same →
537 • Part 4 0f 8 — Continue reading We Are Not The Same →
Three of Many Distinct Causes of PWS →
234 • Part 3 of 8 — A patient-advocate companion guide to the graphic of the same title — Same surface appearance. Different vascular architecture. Different biology. Different treatment implications. Continue reading Three of Many Distinct Causes of PWS →
They look like us. →
81 • Part 2 of 8 in the Care4-Rare guided introduction — It is one of the most natural things a parent does in the first days after a diagnosis — You go online — You find a support group, a Facebook page, a forum full of families navigating the same unfamiliar territory. You scroll through photographs — And there, in another child’s face, another child’s leg, another child’s arm, you see something that looks like your child. Continue reading They look like us. →
YOU FOUND US →
269 • Part 1 of 8 — Companion pieces that together form the guided introduction to this website — Read in any order — Each piece stands on its own — Or — follow the sequence: it builds deliberately, one page at a time — You are probably here because someone noticed a color on skin — A reddish-purple mark on your child, on yourself, on someone you love. A doctor gave it a name. Maybe several names, over several years.
Continue reading YOU FOUND US →
Care 4 - Rare 