Skip to content

Care 4 – Rare

, living w/ Congenital Vascular Malformations [ Care4Rare.blog ]

Primary Navigation

  • HOME
  • DASHBOARD
  • CLASSIFICATION CATALOG • LEGEND
  • CARE4-RARE COMPENDIUM
    • STRUCTURED VASCULAR MALFORMATION
      • SLOW-FLOW
        • LYMPHATIC MALFORMATION
          • ISOLATED
            • DISCRETE
              • MACRO CYSTIC
                • SPEC • HANDOUT
      • FAST FLOW
      • [NVT]
      • [PUV]

...non-commercial site,
non-profit, personal reference site

PATIENT SYNTHESIZED

. . . an information model for moms, dads, doctors, and those of us born rare, and living rare

◈ Science:
We are not all the same
PORT-WINE STAINS
THREE OF MANY

⧉  Enlarge

◈ Support:
We are not all the same.
CARE4-RARE COMPENDIUM

⧉  Enlarge

◈ Support:
Finding Needles in a Haystack
MASTER CATALOG

⧉  Enlarge

HAMBURG • ISSVA MODELS

[ classification Matrix - Hamburg 2023 ] via radiopaedia.org

[ classification matrix - ISSVA current ] via ISSVA

[ classification matrix - ISSVA 2014 / 2018 historical ] via radiopaedia.org

[ glossary - ISSVA ] via ISSVA

SPOTLIGHT

  • COMPENDIUM
  • CARE4-RARE RESOURCES
  • CARE and RESOURCES DIRECTORY

HERE FOR YOU

Live in California, USA
Patient
Worldwide Advocate
— — —
Phone/Email Contact

Pacific Time, USA
9 AM - 9 PM

• • •

⧉  

◈

. . . double window symbols are clickable "enlarge image" links

. . . diamond symbols are clickable "go-to" or "jump" links

◈ HOME

◈ BLOG

◈ Syndromes:
We are not all the same
THE SYNDROME SPECTRUM

⧉  Enlarge

◈ Support:
Science is not all the Same
HAMBURG CROSS-REFERENCE

⧉  Enlarge

◈ Support:
Finding Clinics & Support
MED DIRECTORY

⧉  Enlarge

BLOG INDEXING

↓

↓

born-rare dads health issva klippel-trenaunay life mental-health moms neurology science vascular-anomalies wellness

BLOG POSTS

June 2026
M T W T F S S
1234567
891011121314
15161718192021
22232425262728
2930  
« Jun    

• • •

[CC—CO—LM—SF—SVM]

CCLA —
COMPLEX,
LYMPHATIC ANOMALY,
SLOW-FLOW TYPE,
VASCULAR MALFORMATION


DEEP DIVES

[CC—CO—LM—SF—SVM]

◈ Legend


  • 01—SPECIFICATION

OVERVIEW


yyy


↑ ◈ HOME

BLOG ◈ ↑

Share on:

  • Print (Opens in new window) Print
  • Email a link to a friend (Opens in new window) Email
  • Share on LinkedIn (Opens in new window) LinkedIn
  • Share on X (Opens in new window) X
  • Share on Facebook (Opens in new window) Facebook

Like this:

Like Loading…
Create a website or blog at WordPress.com

Loading Comments...

    %d