, living w/ Congenital Vascular Malformations [ kare4rare.wordpress.com ]

CONGENITAL VASCULAR MALFORMATIONS SPECTRUM

. . . an information model for moms, dads, doctors, and those of us born rare, living rare

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. . . other diamond symbols are clickable "go-to" or "jump" links

◈ Port Wine Stains:
We are not all the same

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◈ Syndromes:
We are not all the same

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∆ ◈ Support:
Here is Map: Hamburg-to-ISSVA

◈ Support:
Here is our Grand Compendium

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Support:
Here is our Anomalies Brief

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Diagnosed:
Syndrome & Symptoms

Klippel-Trenaunay Syndrome (KTS)

… a KT-Patient’s Personal Notebook which we reference when thinking about how much we have learned since being diagnosed with KT Syndrome.

Check back or subscribe for updates, as we transfer my personal notes into this digital archive.

This part of our journey begins now, it is conceptual.

*** Soon. This piece is not ready for publishing yet.

Here for You —

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Phone/Email Contact

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