OHSU Doernbecher Children’s Hospital — Hemangioma and Vascular Birthmarks Clinic

GR › GR-USA › GR-NORTHWEST › GR-OREGON › EM-MEDICAL PROVIDER › EM-CHILDREN’S HOSPITAL

Who are you, in one plain sentence?

OHSU Doernbecher Children's Hospital — Hemangioma and Vascular Birthmarks Clinic

The Hemangioma and Vascular Birthmarks Clinic at OHSU Doernbecher Children’s Hospital in Portland, Oregon is a multidisciplinary program specifically formed to address the needs of patients with complex vascular lesions — covering infants, children, and adults, with a published team spanning Dermatology, Surgery, Hematology, and Interventional Radiology, and two named co-directors with specific vascular anomaly expertise.

Who do you see?

Their published scope is infants, children, and adults with vascular lesions and birthmarks. The clinic is listed by the ISSVA as treating Children & Adults. OHSU Doernbecher holds Magnet designation — the highest honor for hospital nursing excellence — and is among 170 member hospitals in the U.S. and Canada in the Children’s Miracle Network. Worth confirming: current intake availability and whether your condition type matches the team’s current scope.

What conditions do you treat?

Their published program treats hemangiomas (including medical management with steroids and propranolol), vascular malformations, and lymphatic malformations (cystic hygromas). They note that up to 50-60% of vascular birthmarks are diagnosed incorrectly or mistreated at clinics unfamiliar with these lesions, and position their clinic as the diagnostic and treatment precision resource for the region. Worth asking: whether they have experience with your specific syndrome or combined anomaly type.

What does your team look like?

Co-directors: Carol MacArthur, MD (Pediatric Otolaryngology, Head and Neck Surgery) and Alison Small, MD (Pediatric Dermatology). Other published team members include Gary Nesbit, MD (Interventional Radiology), John Kaufman, MD (Interventional Radiology), Melinda Wu, MD (Pediatric Hematology), Monica Deshpande, NP, Lori Howell, MD (Plastic Surgery), and Andrew Phelps, MD. The team sees patients in the Physician’s Pavilion and in Doernbecher Children’s Hospital on the main OHSU campus. Both co-directors attended the ISSVA World Congress 2026 in Philadelphia — a signal of continued active engagement with the field.

How do I get in?

Phone: 503-494-5350. Email: enthns@ohsu.edu. Address: OHSU Doernbecher Children’s Hospital Specialty Clinics, 7th floor, 700 S.W. Campus Drive, Portland, OR 97239. Program: ohsu.edu/ent/ohsu-hemangioma-and-vascular-birthmarks-clinic. Worth confirming: current intake procedures — the clinic notes that providers often need to review chart notes before scheduling to coordinate any additional tests.

What makes you different?

For the Pacific Northwest — Oregon, Washington, and Idaho — OHSU Doernbecher is the ISSVA-listed anchor program. The named co-director model (MacArthur from ENT/Surgery, Small from Dermatology) reflects the cross-specialty leadership structure that characterizes programs with genuine multidisciplinary depth rather than a single-specialty clinic that occasionally consults others. The diagnostic precision emphasis — noting that up to 60% of vascular birthmarks are misdiagnosed elsewhere — is the clinic’s own statement of what they offer families who have already navigated incorrect diagnoses. Alison Small, MD’s patient reviews specifically note her particular interest in port wine stains, overgrowth syndromes, and complex vascular anomalies — worth knowing before your first appointment.


In Their Own Voice

OHSU describes the Hemangioma and Vascular Birthmarks Clinic as formed specifically to address the needs of patients with complex vascular lesions, with expertise to properly diagnose and recommend treatment for conditions that are often misdiagnosed elsewhere. The clinic provides the full range of diagnosis, medical, laser, and surgical technology available through OHSU’s association with Doernbecher Children’s Hospital, including MRI and other advanced diagnostic imaging. By seeing several specialists in one visit, care is coordinated in a way that reduces the burden of navigating multiple appointments across different departments.

Both co-directors — Carol MacArthur, MD and Alison Small, MD — were noted as attending the ISSVA World Congress 2026 in Philadelphia (titled ‘The Latest in Vascular Anomalies’), along with nurse practitioner Mortuma Murry, DNP-PNP. Active conference participation is a meaningful signal of a team maintaining current standards in a rapidly evolving field. OHSU Doernbecher holds Magnet nursing designation — the highest honor in hospital nursing excellence — and is a member of the Children’s Miracle Network.

Source: ohsu.edu/ent/ohsu-hemangioma-and-vascular-birthmarks-clinic · ohsu.edu/doernbecher/birthmarks-and-vascular-anomalies · ohsu.edu/providers/alison-small-md · ISSVA Multidisciplinary Teams Registry (Carol Macarthur, macarthc@ohsu.edu, 503-494-5350). Verified: July 2026.


Pedigree

ProgramHemangioma and Vascular Birthmarks Clinic
AddressOHSU Doernbecher Specialty Clinics, 7th floor, 700 S.W. Campus Drive, Portland, OR 97239
Phone503-494-5350
Emailenthns@ohsu.edu
ISSVA ContactCarol MacArthur, MD — macarthc@ohsu.edu
Program URLohsu.edu/ent/ohsu-hemangioma-and-vascular-birthmarks-clinic
PatientsInfants, Children, and Adults
ISSVA RegistryListed — Multidisciplinary Teams
Co-DirectorsCarol MacArthur, MD (Pediatric Otolaryngology) · Alison Small, MD (Pediatric Dermatology)
TeamGary Nesbit, MD (IR) · John Kaufman, MD (IR) · Melinda Wu, MD (Hematology) · Monica Deshpande, NP · Lori Howell, MD (Plastic Surgery) · Andrew Phelps, MD
DesignationsMagnet Nursing Designation · Children’s Miracle Network member
ISSVA 2026MacArthur, Small, and Murry attended ISSVA World Congress 2026, Philadelphia

Verification & Catalog Status

Confidence: Tier 1 — Verified Institutional | ID: prov:000010|Source: Institution website · ISSVA Registry|Last Verified: July 2026
Catalog Cross-Reference: Pending — see Care4-Rare Compendium
Care4-Rare is a patient-synthesized reference. Information is sourced from publicly available records and is provided for educational purposes. Practitioners and institutions are invited to contact us to confirm, update, or expand their listing.
: OHSU Doernbecher Children’s Hospital — Hemangioma and Vascular Birthmarks Clinic

Leave a Reply

Your email address will not be published. Required fields are marked *