To: Parents & Patients NOTE: 6 BEGINNING ← PREV | NEXT → When a specialist orders an MRI, Doppler ultrasound, … Continue reading What Lies Beneath the Surface ↓

…. FOOTPRINTS PDF … We turn a corner with this footstep, here Will speak directly. He takes us down discovery … Continue reading One Syndrome Becomes Three ↓

…. FOOTPRINTS PDF … Early in embryonic development, a single cell makes a minor copying error. In the vast majority … Continue reading The Cell That Divided Differently ↓

…. FOOTPRINTS PDF … For forty-two years, people gave Will’s condition different names. Every new doctor seemed certain. Every new … Continue reading Forty-Two Years to a Real Diagnosis ↓

…. FOOTPRINTS PDF … When you scroll through photos of others with a similar visual patchwork, that feeling of “Hey, … Continue reading Looking Alike Is Not Being Alike ↓

PDF ◈ 💜 . . . a website guided tour We strive to be compassionate with a humble but resonant … Continue reading WELCOME

I asked myself, what can a 71-year-old person contribute to a community born rare with vascular malformations? I’m a layperson, … Continue reading Why Care4-Rare. How. Why now?

THE FIRST GOOGLE SEARCH Have you searched for it. “Hamburg classification vascular malformations” first? “ISSVA classification vascular anomalies” right after? … Continue reading The 1st Essay: Why P · 2·P — PHENOTYPE TO PATHOPHYSIOLOGY ?

Continue reading ◈ KT [SY-CO-SF-SVM] · Klippel-Trenaunay Syndrome | Specification

Inherited vs. “De Novo” (Brand New) Think of the master blueprint as a digital file. There are two entirely different … Continue reading Basis Genetics Explained

DRAFT — FOR REVIEW ONLY. Original wording, written from general medical/coding knowledge — not copied from any external lookup site. … Continue reading ICD-10 Q27.3 · Peripheral Arteriovenous Malformation

CD-10 code Q27.3 represents a peripheral arteriovenous malformation (AVM), which is a birth defect involving abnormal direct connections between arteries … Continue reading CD-10 code Q27.3 | peripheral arteriovenous malformation (AVM)

DRAFT — FOR REVIEW ONLY. Original content, built from general medical knowledge of AVF. Verifying all clinical specifics, the Hamburg … Continue reading ◈ AF [IS-FF-SVM] · AVF · Arteriovenous Fistula | Specification

DRAFT — FOR REVIEW ONLY. Matched to the is-pw-cm-sf-svm-abstract template exactly. [◈ [CL]] › [◈ [SVM]] › [◈ [FF-SVM]] › … Continue reading ◈ AF [IS-FF-SVM] · AVF · Arteriovenous Fistula | Abstract

DRAFT — FOR REVIEW ONLY. Original content, built from general medical knowledge of AVF, matched to the is-pw-cm-sf-svm-mdbr “As-Built Report” … Continue reading ◈ AF [IS-FF-SVM] · AVF · Arteriovenous Fistula | MDBR

DRAFT — FOR REVIEW ONLY. Matched to the is-pw-cm-sf-svm-dive template exactly (breadcrumb, Q&A headers, comparison tables, Source References table, footer … Continue reading ◈ AM [IS-FF-SVM] · AVM · Arteriovenous Malformation | Clinical Dive

DRAFT — FOR REVIEW ONLY. Matched to the is-pw-cm-sf-svm-abstract template exactly (breadcrumb, Classification line, italic thesis, summary table, callout quote, … Continue reading ◈ AM [IS-FF-SVM] · AVM · Arteriovenous Malformation | Abstract

DRAFT — FOR REVIEW ONLY. Original content, built from general medical knowledge of AVM. Verifying all clinical specifics. — As-Built … Continue reading ◈ AM [IS-FF-SVM] · AVM · Arteriovenous Malformation | MDBR

DRAFT — FOR REVIEW ONLY. Original content, built from general medical knowledge of AVM, matched to the 01-spec-051 template exactly. … Continue reading ◈ AM [IS-FF-SVM] · AVM · Arteriovenous Malformation | Specification

DRAFT — FOR REVIEW ONLY. Matched to the is-pw-cm-sf-svm-dive template exactly. [◈ [CL]] › [◈ [SVM]] › [◈ [FF-SVM]] › … Continue reading ◈ AF [IS-FF-SVM] · AVF · Arteriovenous Fistula | Clinical Dive

Hello Mom, Dad, Those Born Rare were actively writing this post. Please check back. Continue reading Finding a Specialiast or Center Near You

Hello Mom, Dad, Those Born Rare were actively writing this post. Please check back. Continue reading Finding Your Diagnosis in the Catalog

“The picture is not worth a thousand words. It compels a thousand words of explanation.” It took a lifetime to … Continue reading Website Preface

CC BY 4.0. — The Creative Commons Attribution 4.0 International (CC BY 4.0) license is a widely used legal tool … Continue reading Intellectual Property | Copyrights | Disclaimers